Thursday, January 8, 2015

My Cancer Story

I decided to share my story talking about how I found out that I had Ovarian Cancer. I apologize for it being so long. I didn't share the beginning part with a lot of people, so I decided to go in more depth! Cancer is such a hard word to hear and say, but you are never alone throughout it all. No matter where you turn, you'll always have someone by your side! Here's my story...my cancer story :)


My story begins on October 9th, 2014. I went to my regular doctor’s office, because of some abdominal pain I was having. My stomach was also sticking out and was very hard! I did not know what to expect but I was very scared. I went inside the doctor’s office probably around 11am. My nurse wanted me to take a urine test because she thought I might be pregnant. I knew this wasn’t the case but I took one and waited for the results with my mom.

About 30 minutes later the nurse came back into the room and told me she thinks I am pregnant. She told me how the test came back slightly positive, so she thought I had something called an ectopic pregnancy. An ectopic pregnancy is where the fetus grows outside of your fallopian tube. It is very dangerous and life-threatening, and my nurse wanted me to get an ultra sound done right away.

I remember immediately just freaking out and crying. I was so shocked because my mom was calm throughout this and I thought she would have been freaking out and yelling at me. I was even more nervous because if it was an ectopic pregnancy, I would’ve had to have emergency surgery that day. I never had surgery before and I didn’t want that to be my first! After the ultra sound was all done, I just remember sitting and waiting for what seemed like hours. We had to wait for the results to come in so we knew what the next steps were.

When my nurse finally came down, she called me and my mom out in the hallway and asked to speak with us privately. She had a worried look on her face which made me so nervous. “Ok so after looking at your ultra sound we found something that looks very worrisome”. Those were her first words. I couldn’t breathe and I started shaking. “We found a large unidentified mass….” That was it. That’s all I heard before I started tuning her out. I could feel the tears rolling down my face. All that was in my mind was cancer. I screamed out and asked her if that was what I had. I was so nervous and scared. My nurse reassured me that they believe I had something called a teratoma tumor, which is 98% of the time benign (non-cancerous). All I would need was surgery and then I would be fine. After we had a long talk, I went and got my first ever CAT scan done, so they could get a better look of the mass. (I hate that word!).

The very next day, October 10, I got accepted into the Disney College Program! I was so excited and remember thinking that this acceptance couldn’t have come at a better time! I thought of it as God’s way of telling me everything was going to be ok. Even if it didn’t look good now, it will all be good in the end. Because I am destined to do great things!

That following week I met with an Oncologist who was going to be handling my surgery. My nurse thought it would be best if I went with an Oncologist just in case my tumor was cancerous. They weren’t expecting it to be, but if it was, that way I wouldn’t have to keep changing doctors. When I met with my doctor who was going to be handling my surgery, he was very nice and friendly. He just went over what the procedure was going to be like and answered any of my questions.

On October 21st 2014, I had my surgery. I remember being afraid and crying a lot that morning. I had an early surgery, so I got to the hospital extremely early. Maybe around 6. I was scared about getting Anesthesia, because I was afraid I wasn’t going to wake up. I told all the nurses around me how I got accepted into the Disney College Program and they talked to me about that until I passed out from the Anesthesia.

When I woke up in the recovery room I just remember wondering where my mom was. She was the last family member I saw before I passed out so I was wondering why she wasn’t by my side. I also remember asking the nurses if I had cancer, but none of them would tell me. When they finally said they were going to take me to my room I was so excited so I could see my family!

While I was in recovery my doctor came out to tell my parents how they were wrong on my original diagnosis. I did not have a teratoma tumor, but he thought I had Ovarian Cancer. He wasn’t sure exactly what type, but he thought it was a rare kind the girl’s ages 7-20 get. My parents and doctor made the decision not to tell me I had cancer until I was fully recovered from the surgery. A lot of people asked me if I was mad that I didn’t know, but I was actually happy they didn’t tell me. Being in the hospital was so hard for me. If I had the stress of knowing I had cancer while I was in the hospital, I think I would have had a longer recovery time.

Being in the hospital was probably one of the hardest things I have ever done. Way harder than chemo. Not because of the staff though. I had amazing nurses and also an amazing doctor! I hated not being able to eat regular food. I was on a liquid diet for 2/4 days I was there. And then when I finally was able to eat solids, I didn’t have the appetite for it. Nurses would come and wake you up every 3 hours starting at midnight to 6 in the morning, making it so hard to sleep! I also felt bad making my mom have to stay there the whole time and my dad having to travel from work to the hospital and then back home to take care of my brother. I felt very dependent on people and I hated not being able to do a lot on my own. I had a pretty long scar with staples in my stomach after my surgery. And I refused to look at it until I got home. I don’t know why I didn’t want to look, I was just scared I guess ha.

I went home on October 24th, and the very next day my parents told me I had cancer. While in the hospital I was told that there’s a chance I could have cancer but the doctor wasn’t sure so he had to run some more tests. That day was very hard for both me and my parents. We weren’t exactly sure what type of Ovarian Cancer I had. There are 3 different types of Ovarian Cancer, and my doctor thought it was a rare pediatric ovarian cancer. On October 28th, I went to my doctor’s office to get my staples out and also find out what type of cancer I had. After I got my staples out, my doctor informed me that I had a 13lb tumor that they had taken out. It was stage 3 dysgerminoma Ovarian Cancer. The cancer had spread to both my ovaries, one fallopian tube, and a lymph node. Along with the tumor, I had one ovary and a fallopian tube removed. I plan to meet with a fertility specialist soon to talk about my chances on having kids.

The next step was planning my treatments. There were 3 different types of treatment plans I could have done. My treatment consisted of 3 different treatments for 3 days on a 28 day cycle. I started my treatments in Early November and ended in early January! *silent cheer for being all done*. For each one of my treatments, I ran into a problem. My first treatment was definitely the worst. I had an allergic reaction to one of my chemo meds during chemo! It all happened so fast. I just remember sitting there with my dad and then suddenly hardly being able to breathe. I kept having to grasp for air! I called my nurse and within 30 seconds there were about 15 nurses in my small room trying to stop my reaction! Definitely one of the scariest things that has happened to me! My second treatment wasn’t anything major; I had to get stuck with an IV needle 12 times for the 3 days I had chemo! L I didn’t bring my veins with me for that treatment and so it was really hard for the nurses to find a vein that was good enough to use. For my last treatment that I just had, my white blood count was too low to receive a treatment. Instead of holding off treatment for a week, I got a shot today that helps my bone marrow make more blood cells. The shot was painful and has a couple minor side effects…but I am just glad to say I am officially done with chemotherapy!

It has been a long journey, one that isn’t over yet, but I am happy to say I am starting this New Year off right! Cancer free J

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